Forschung

Im Folgenden finden Sie eine Auswahl an Forschungsprojekten und Studien, die die Häusliche-Pflege-Skala (HPS) bzw. die Kurzform der Häusliche-Pflege-Skala (HPS-k) verwendeten. Die Liste hat nicht den Anspruch auf Vollständigkeit. Wenn Ihr Projekt hier nicht aufgelistet ist, dann kontaktieren Sie uns gerne hier.

Validierungsstudien:

  • Langform der HPS:
    • deutsch:
      • Gräßel, E. (2001). Häusliche-Pflege-Skala HPS zur Erfassung der Belastung bei betreuenden oder pflegenden Personen. Ebersberg: Vless.
      • Grau, H., Graessel, E. & Berth, H. (2015). The subjective burden of informal caregivers of persons with dementia: extended validation of the German language version of the Burden Scale for Family Caregivers (BSFC). Aging & Mental Health, 19(2), 159-168. https://doi.org/10.1080/13607863.2014.920296
    • englisch: Graessel, E., Chiu, T. & Oliver, R. (2003). Development and validation of the Burden Scale for Family Caregivers (BSFC). Toronto: Comprehensive Rehabilitation and Mental Health Services.
    • dänisch: Brogaard, T., Neergaard, M. A., Guldin, M. B., Sokolowski, I. & Vedsted, P. (2013). Translation, adaptation and data quality of a Danish version of the Burden Scale for Family Caregivers. Scandinavian Journal of Caring Sciences, 27(4), 1018-1026. https://doi.org/10.1111/j.1471-6712.2012.01092.x
    • türkisch: Ulusoy, N. & Graessel, E. (2017). Subjective burden of family caregivers with Turkish immigration background in Germany. Zeitschrift für Gerontologie und Geriatrie, 50(4). https://doi.org/10.1007/s00391-016-1044-y
  • Kurzform der HPS:
    • deutsch:
      • Graessel, E., Berth, H., Lichte, T. & Grau, H. (2014). Subjective caregiver burden: validity of the 10-item short version of the Burden Scale for Family Caregivers BSFC-s. BMC Geriatrics, 14, 1-9. https://doi.org/10.1186/1471-2318-14-23 (Open access)
      • Pendergrass, A., Malnis, C., Graf, U., Engel, S. & Graessel, E. (2018). Screening for caregivers at risk: Extended validation of the short version of the Burden Scale for Family Caregivers (BSFC-s) with a valid classification system for caregivers caring for an older person at home. BMC Health Services Research, 18, 1-9. https://doi.org/10.1186/s12913-018-3047-4 (Open access)
    • arabisch: Zahaika, D., Daraweesh, D., Shqerat, S., Arameen, D. & Halaweh, H. (2021). Challenges facing family caregivers of children with disabilities during COVID-19 pandemic in Palestine. Journal of Primary Care & Community Health, 12. https://doi.org/10.1177/21501327211043039 (Open access)
    • japanisch: Abe, K. (2024). Validation of the Japanese version of the Burden Scale for Family Caregivers short form. Asian Journal of Gerontology & Geriatrics, 19(2), 51–5.
    • malaiisch: Shukri, M., Mustofai, M. A., Md Yasin, M. A. S. & Tuan Hadi, T. S. (2020). Burden, quality of life, anxiety, and depressive symptoms among caregivers of hemodialysis patients: The role of social support. The International Journal of Psychiatry in Medicine, 55(6), 397-407.

Reviews:

  • Schweiz:
    • Domeisen Benedetti, F., Hechinger, M. & Fringer, A. (2024). Self-Assessment Instruments for Supporting Family Caregivers: An Integrative Review. Healthcare, 12(10), 1016. https://doi.org/10.3390/healthcare12101016 (Open access)

Wissenschaftliche Projekte:

  • Deutschland:
    • Aust, E., Linse, K., Graupner, S. T., Joos, M., Liebscher, D., Grosskreutz, J., Prudlo, J., Meyer, T., Günther, R., Pannasch, S. & Hermann, A. (2022). Quality of life and mental health in the locked-in-state—differences between patients with amyotrophic lateral sclerosis and their next of kin. Journal of Neurology, 269(11), 5910-5925. https://doi.org/10.1007/s00415-022-11238-0 (Open access)
    • Behrndt, E. M., Straubmeier, M., Seidl, H., Book, S., Graessel, E. & Luttenberger, K. (2017). The German day-care study: multicomponent non-drug therapy for people with cognitive impairment in day-care centres supplemented with caregiver counselling (DeTaMAKS)–study protocol of a cluster-randomised controlled trial. BMC Health Services Research, 17, 1-16.
    • Behrndt, E. M., Straubmeier, M., Seidl, H., Vetter, C., Luttenberger, K. & Graessel, E. (2019). Brief telephone counselling is effective for caregivers who do not experience any major life events–caregiver-related outcomes of the German day-care study. BMC Health Services Research, 19, 1-14
    • Donath, C., Luttenberger, K., Graessel, E., Scheel, J., Pendergrass, A. & Behrndt, E. M. (2019). Can brief telephone interventions reduce caregiver burden and depression in caregivers of people with cognitive impairment? – long-term results of the German day-care study (RCT). BMC Geriatrics, 19, 1-15.
    • Donath, C., Pendergrass, A. & Gräßel, E. (2023). Zuhause-Pflegen und trotzdem gesund bleiben? Risiko-und Schutzfaktoren für dysfunktionales Coping bei pflegenden Angehörigen. PPmP-Psychotherapie· Psychosomatik· Medizinische Psychologie, 73(07), 290-299.
    • Heckel, M. & Herbst, F. A. (2024). Non-kin caregivers of terminally ill people: Contributions, experiences, and needs: A protocol for a mixed-methods study. PLOS ONE, 19(6), e0306282. (Open access)
    • Karg, N., Graessel, E., Randzio, O. & Pendergrass, A. (2018). Dementia as a predictor of care-related quality of life in informal caregivers: a cross-sectional study to investigate differences in health-related outcomes between dementia and non-dementia caregivers. BMC Geriatrics, 18, 1-9.
    • Konerding, U., Bowen, T., Forte, P., Karampli, E., Malmström, T., Pavi, E., Torkki, P. & Graessel, E. (2019). Do caregiver characteristics affect caregiver burden differently in different countries?. American Journal of Alzheimer’s Disease & Other Dementias®, 34(3), 148-152.
    • Krutter, S., Schaffler-Schaden, D., Essl-Maurer, R., Wurm, L., Seymer, A., Kriechmayr, C., Mann, E., Osterbrink, J. & Flamm, M. (2020). Comparing perspectives of family caregivers and healthcare professionals regarding caregiver burden in dementia care: results of a mixed methods study in a rural setting. Age and Ageing, 49(2), 199-207. https://doi.org/10.1093/ageing/afz165 (Open access)
    • Krutter, S., Schaffler‐Schaden, D., Eßl‐Maurer, R., Seymer, A., Osterbrink, J. & Flamm, M. (2022). Home care nursing for persons with dementia from a family caregivers‘ point of view: Predictors of utilisation in a rural setting in Austria. Health & Social Care in the Community, 30(1), 389-399. https://doi.org/10.1111/hsc.13412 (Open access)
    • Kürten, L., Dietzel, N., Kolominsky-Rabas, P. L. & Graessel, E. (2021). Predictors of the one-year-change in depressiveness in informal caregivers of community-dwelling people with dementia. BMC Psychiatry, 21, 1-11.
    • Lehnerer, S., Hotter, B., Padberg, I., Knispel, P., Remstedt, D., Liebenau, A., Grittner, U., Wellwood, I., Meisel, A. & BSA Long Term Care Study Group. (2019). Social work support and unmet social needs in life after stroke: a cross-sectional exploratory study. BMC Neurology, 19, 1-10. https://doi.org/10.1186/s12883-019-1451-y (Open access)
    • Linse, K., Weber, C., Reilich, P., Schöberl, F., Boentert, M., Petri, S., … & Günther, R. (2024). Patients’ and caregivers’ perception of multidimensional and palliative care in amyotrophic lateral sclerosis–protocol of a German multicentre study. Neurological Research and Practice, 6(1), 34. https://doi.org/10.1186/s42466-024-00328-1 (Open access)
    • Linse, K., Aust, E., Günther, R., & Hermann, A. (2022). Caregivers’ view of socio-medical care in the terminal phase of amyotrophic lateral sclerosis—How can we improve holistic care in ALS?. Journal of Clinical Medicine, 11(1), 254. https://doi.org/10.3390/jcm11010254 (Open access)
    • Luttenberger, K., Graessel, E., Behrndt, E. M., Özbe, D., Donath, C. & Scheel, J. (2019). Responder analysis of a multicomponent non-pharmacological intervention (MAKS) for people with cognitive impairment in the German day-care study (DeTaMAKS). Frontiers in Psychiatry, 10, 587.
    • Marbin, D., Piper, S. K., Lehnerer, S., Harms, U. & Meisel, A. (2022). Mental health in myasthenia gravis patients and its impact on caregiver burden. Scientific Reports, 12(1), 19275. https://doi.org/10.1038/s41598-022-22078-3 (Open access)
    • Reichold, M., Dietzel, N., Karrer, L., Graessel, E., Kolominsky-Rabas, P. L. & Prokosch, H. U. (2020). Stakeholder Perspectives on the Key Components of a Digital Service Platform Supporting Dementia–digiDEM Bayern. dHealth 2020–Biomedical Informatics for Health and Care, 271, 224-231. IOS Press. (Open access)
    • Reichold, M., Selau, M., Graessel, E., Kolominsky-Rabas, P. L. & Prokosch, H. U. (2021). eHealth Interventions for Dementia–Using WordPress Plugins as a Flexible Dissemination for Dementia Service Providers. In Navigating Healthcare Through Challenging Times, 1-9. IOS Press. (Open access)
    • Schaffler-Schaden, D., Krutter, S., Seymer, A., Eßl-Maurer, R., Flamm, M. & Osterbrink, J. (2021). Caring for a relative with dementia: Determinants and gender differences of caregiver burden in the rural setting. Brain Sciences, 11(11), 1511. https://doi.org/10.3390/brainsci11111511 (Open access)
    • Schaller, S., Marinova-Schmidt, V., Gobin, J., Criegee-Rieck, M., Griebel, L., Engel, S., … & Kolominsky-Rabas, P. L. (2015). Tailored e-Health services for the dementia care setting: a pilot study of ‘eHealthMonitor’. BMC Medical Informatics and Decision Making, 15, 1-9. (Open access)
    • Schaller, S., Marinova-Schmidt, V., Setzer, M., Kondylakis, H., Griebel, L., Sedlmayr, M., … & Kolominsky-Rabas, P. L. (2016). Usefulness of a tailored eHealth service for informal caregivers and professionals in the dementia treatment and care setting: the eHealthMonitor dementia portal. JMIR Research Protocols, 5(2), e4354.
    • Scheerbaum, P., Gräßel, E., Wasic, C. & Pendergrass, A. (2024). Wunsch und Wirklichkeit: Diskrepanz zwischen tatsächlicher und beabsichtigter Nutzung von ambulanten Entlastungsangeboten. Das Gesundheitswesen, 86(S01), 13-20.
    • Scheuermann, J. S., Gräßel, E. & Pendergrass, A. (2024). Vereinbarkeit von Erwerbstätigkeit und häuslicher Pflege: Einflussfaktoren auf eine pflegebedingte Erwerbstätigkeitsreduktion und arbeitsbezogene Wünsche pflegender Angehöriger. Das Gesundheitswesen, 86(S01), 45-53.
    • Spiegl, K., Luttenberger, K., Graessel, E., Becker, L., Scheel, J. & Pendergrass, A. (2021). Predictors of institutionalization in users of day care facilities with mild cognitive impairment to moderate dementia. BMC Health Services Research, 21, 1-10.
    • Zinkevich, A., Lubasch, J. S., Uthoff, S. A. K., Boenisch, J., Sachse, S. K., Bernasconi, T. & Ansmann, L. (2021). Caregiver burden and proxy-reported outcomes of people without natural speech: a cross-sectional survey study. BMJ Open, 11(8), e048789. https://doi.org/10.1136/bmjopen-2021-048789 (Open access)
    • Zinkevich, A., Uthoff, S. A. K., Wirtz, M. A., Boenisch, J., Sachse, S. K., Bernasconi, T., … & Ansmann, L. (2022). Burden of informal caregivers of people without natural speech: a mixed-methods intervention study. BMC Health Services Research, 22(1), 1549. https://doi.org/10.1186/s12913-022-08824-3 (Open access)
    • Zwar, L., König, H. H. & Hajek, A. (2022). Conspiracy mentality among informal caregivers as a risk factor for caregiver burden, mental health, perceived loneliness and social isolation during the COVID-19 pandemic: findings of a representative online study from Germany. Quality of Life Research, 31(11), 3139-3151.
    • Zwar, L., König, H. H. & Hajek, A. (2023). Gender differences in mental health, quality of life, and caregiver burden among informal caregivers during the second wave of the COVID-19 pandemic in Germany: A representative, population-based study. Gerontology, 69(2), 149-162. https://doi.org/10.1159/000523846 (Open access)
    • Zwar, L., König, H. H. & Hajek, A. (2024). Look on the bright side: the relation between family values, positive aspects of care and caregiver burden. European Journal of Ageing, 21(1), 23. https://doi.org/10.1007/s10433-024-00819-9 (Open access)
    • Zwar, L., König, H. H., Delfin, E. & Hajek, A. (2024). Ambivalent ageism and the pains and gains of informal caregiving for older adults: Findings from Germany. Archives of Gerontology and Geriatrics, 129, 105683. https://doi.org/10.1016/j.archger.2024.105683 (Open access)
  • Dänemark:
    • Nielsen, M. K., Neergaard, M. A., Jensen, A. B., Bro, F. & Guldin, M. B. (2016). Psychological distress, health, and socio-economic factors in caregivers of terminally ill patients: a nationwide population-based cohort study. Supportive Care in Cancer, 24, 3057-3067. https://doi.org/10.1007/s00520-016-3120-7
    • Nielsen, M. K., Neergaard, M. A., Jensen, A. B., Vedsted, P., Bro, F. & Guldin, M. B. (2017). Predictors of complicated grief and depression in bereaved caregivers: a nationwide prospective cohort study. Journal of Pain and Symptom Management, 53(3), 540-550. https://doi.org/10.1016/j.jpainsymman.2016.09.013
  • Indien
    • Sinha, D., Varadharasu, V. S., Singh, R. & Dixit, S. (2022). Effect Of Guided Imagery On Caregiver Burden Amongst Caregivers Of Mentally Ill Patients Admitted In Selected Hospital Of Bhubaneswar. NeuroQuantology, 20(19), 1107
  • USA
    • Baddour, K., Mady, L. J., Schwarzbach, H. L., Sabik, L. M., Thomas, T. H., McCoy, J. L. & Tobey, A. (2021). Exploring caregiver burden and financial toxicity in caregivers of tracheostomy-dependent children. International Journal of Pediatric Otorhinolaryngology, 145, 110713. https://doi.org/10.1016/j.ijporl.2021.110713